BLOG.AFFLICTEDWITHRSD.COM: Recent Comments

Comment on Pain Free...

AfflictedWithRSD — Tue, 27 Oct 2009 16:19:02 GMT

The idea behind the laser might be the same. I know that the laser treatment I received is a class 4 laser and goes 7 layers deep into the cells and tells them to wake up and work again. That's the best way I can describe it.

I am still pain free. I get the start to flares and the hypnotherapy helps take care of those. The more stress I am under the more flares try to start so I really need to stay focused and not get myself overwhelmed with too much.

I really am back in life and enjoying it so much again

If you were able to be in remission once I know you can get yourself back into it. Sorry to hear about your accident. I have some fears of what if but if I focus on them then I am not having a life. Can't have a life and live it if you are scared of it.

Hugs.

Comment on Pain Free...

jeisea — Tue, 27 Oct 2009 02:37:42 GMT

I have laser acupuncture. Is this the same? I believe hypnotherapy is a way of retraining the brain. As such it should result in a measurable change in neural activity. I'm so glad things are working out for you now. I was in remission for 4 months until last Wednesday when I had an accident. I got straight on to mirror therapy and laser and Yamamoto New Scalp Acupuncture. I plan to be in remission again very soon.

Comment on Conditions that have responded to Laser Therapy

AfflictedWithRSD — Thu, 27 Aug 2009 18:39:01 GMT

Insurance companies don't cover either treatment, sadly. Look how long it took them to accept acupuncture.

However, in speaking with few hypnotherapy companies, you should not have to pay more than 500 bucks for treatment. If you are charged more, you are being ripped off.

I can attest to that too. On my first appointment, my therapist and I spoke about the details, then she did a CD with the proper suggestions in place, and I listen to that every night at home. Now I will be doing some follow-ups, and I am allowed to take in a list of things that have come up for her to help me with pain wise.

As for Laser TX. The doctor recommends 12 tx's. However, by my 6th tx I told him I was done. He asked that I do 2 more just to set it in stone so to speak, so that's what I did.

Hope you get out of this everything I have. It's wonderful.

Comment on Conditions that have responded to Laser Therapy

thematrix777 — Sat, 22 Aug 2009 14:41:22 GMT

Hi Christine: I'm glad to hear it's working for you. I haven't tried hypnosis yet because I can't afford it. And many insurance company's won't cover it.

However, the mind is a very powerful tool. I believe it can be re-trained; just look how our brain is sending false pain signals to our entire sympathetic nervous system with RSD.

I'm going to look into the Laser Therapy and see if my insurance covers that. I'll let you know if I have it done and how it worked for me.

How long or how many Laser treatments are they recommending you to have?

thematrix777

Comment on Pain Free...

Caf — Tue, 30 Jun 2009 03:35:59 GMT

Woah, pain free?! That's SUPERAWESOMEFANTASTIC!! Metaphorically jumping up and down for you :) Both therapies sound interesting to me, thanks so much for sharing!

Comment on Comic Pain Relief 2007

Barby Ingle — Sat, 30 May 2009 20:22:55 GMT

Comic Pain Relief- VA, 2009
Saturday, Sep 12 7:00p to 10:00p
at Center for the Arts: Harris Theater, Fairfax, VA
AND
Comic Pain Relief- AZ, 2009
Saturday, Oct 24 7:00p to 10:00p
at Tempe Center for the Arts, Tempe, AZ

EVENT INFORMATION (FOR BOTH)
Price: $10-20
Phone: (804) 526-1912/ (480)502-5818
Age Suitability: Teens and up

Join us for a night of laughs at the Hippest Hypnosis Show! The 3rd annual COMIC PAIN RELIEF, is hosted by the Power of Pain Foundation. The MC is Marby Ingle. Headlining the event is the one and only Tom Deluca, who will choose audience members to be hypnotized on stage. For more information on go to www.powerofpain.org. Donations are 100% tax deductible, the POPF is a 501-C-3 charity. 804-526-1912. Check out Tom Deluca at www.tomdeluca.com

Comment on 2009 Achilles Walk for Hope & Possibility

Jami McAllister — Thu, 28 May 2009 02:42:45 GMT

I would like to join the Achilles walk and obtain donations. Please contact me at 949.784-.9394. I have had RSD since March 2006 and installed the spinal cord stimulator lat November. My attitude is positive, however, I still have my pain and down days. I would love to be around people like me because I feel alone and no one understands. I have great days and then my pain can get to a ten in a heart beat. I am requesting my vendors for donations so we can research this crazy disease and would love to obtain more information regarding it. I'm happy I still have my right leg after three Achilles tendon repair, but dissatisfied I incurred RSD/CRSP. It is a long story, I thought I started having seizures because I would shake and sweat in the middle of the night. I will share more later....I just do not want to re-hash everything right now and I feel it is my duty to walk next month and be with my kind. Therefore, please contact me..my girlfriend who has supported me through this whole ordeal will be walking with me and that makes me the happiest person on earth. We have been through the ringer....I'm from LOng Beach, Ca and she is from Phoenix, AX. She is the best, also known as my ROCK. I love Amy.

Comment on Sex and RSD/CRPS

Stmpga — Mon, 11 May 2009 02:21:35 GMT

I can totally relate to your post. I feel bad for poor hubby because he feels like he did something to cause the pain.

Comment on Caregivers and websites for Caregivers

Tigerlily — Sat, 09 May 2009 17:13:51 GMT

I have started a blog for tips and tricks of caregiving. I am my Mother's full-time caregiver. She suffers from RSD. I have been searching for a good caregiver's website/blog myself and I am glad I am not the only one! Thank you!

Comment on Sex and RSD/CRPS

Elle — Thu, 07 May 2009 20:33:01 GMT

Sex and RSD...
I have been with my husband for 13 years this Nov.I have had RSD for 3 years. Things have definatly changed.I struggle to balance limiting my pain and having a 'normal' relationship. I wish there was an easy answer or fix too this issue. As it is now I feel that I am forcing myself and faking any enjoyment. This is sad, I feel like I am lying to my husband. He really deserves better. It would hurt him so much to know how painful sex is for me. I hope he never finds out. I limit the number of times per week, and I try to stay in positions that are the least painful. Other than that I don't know what to do.
Thanks,
Elle