BLOG.AFFLICTEDWITHRSD.COM

Comic Pain Relief

Comic Pain Relief- VA, 2009
Saturday, Sep 12 7:00p to 10:00p
at Center for the Arts: Harris Theater, Fairfax, VA
AND
Comic Pain Relief- AZ, 2009
Saturday, Oct 24 7:00p to 10:00p
at Tempe Center for the Arts, Tempe, AZ

EVENT INFORMATION (FOR BOTH)
Price: $10-20
Phone: (804) 526-1912/ (480)502-5818
Age Suitability: Teens and up

Join us for a night of laughs at the Hippest Hypnosis Show! The 3rd annual
COMIC PAIN RELIEF, is hosted by the Power of Pain Foundation. The MC is
Marby Ingle. Headlining the event is the one and only Tom Deluca, who will
choose audience members to be hypnotized on stage. For more information on
go to www.powerofpain.org. Donations are 100% tax deductible, the POPF is a
501-C-3 charity. 804-526-1912. Check out Tom Deluca at www.tomdeluca.com


Stay Blessed,
Christine

Pain free from RSD!!
http://afflictedwithrsd.com
http://blog.afflictedwithrsd.com

Wedding information
http://christineleiendecker.com

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Conditions that have responded to Laser Therapy

Partial List of Conditions that have Responded to Laser Therapy (given to me by Dr. Barold at his seminar)

Arthritis
Osteoarthritis
Rheumatoid Arthritis
Neck/Back Injuries
Whiplash
Low Back Pain
Herniated Lumbar Disc
Sciatica
Neck Pain
Herniated Cervical Disc
Shoulder Pain
Rotator Cuff Injuries/Tears
Headaches
Carpal Tunnel Syndrome
Knee Pain
Injuries of the Knee Ligaments/Meniscus
TMJ Dysfunction
Repetitive Motion Injuries of the Hand
Hip Bursitis
Patello-femoral Syndrome
Tendonitis (Biceps, Achilles, Elbow, etc)
Tennis/Golfer's Elbow
Plantar Fasciitis
Ankle Sprain
Chronic Non-Healing Wounds
Peripheral Neuropathy
Ankle Sprain
Diabetic Ulcers
Burns
Pinched Nerves
Diabetic Neuropathy
Fibromyalgia
Trigeminal Neuralgia
Muscle Strains/Sprains
Hamstring Pull
Myofascial Trigger Points
Shin Splints
Morton's Neuroma
Stress Fractures
Bunion Pain
Reflex Sympathetic Dystrophy/Complex Regional Pain Syndrome

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Pain Free...

I have been pain free now for 2 weeks. I have been receiving 2 new treatments for the last 3 weeks and have seen a great benefit from them.

The 2 treatments I have received are High Power Laser Therapy and Hypnotherapy.

High Power Laser Therapy (HPLT): This is a class IV laser that will go into your body up to 7 layers deep. It goes into your cells energizing them and getting them to heal themselves.

First, the laser, which on high gets warm but not hot, is placed above my main blood vessel for my right lower extremity (right leg) to get the blood flowing again. Which in turn makes my leg warmer.

Second, the laser is ran up and down on the nerves in my leg to get them to energize and open up and not constrict anymore as is the case with RSD/CRPS. Then the laser is ran directly over my initial injury site, my knee, to help energize the cells there to heal damage that has been done as a result of the injury and the result of the RSD/CRPS. Lastly, the laser is placed upon my stomach which reaches through to my back to energize the sympathetic nervous system.

My doctor is Dr. Barold. He has been trained to use the laser on patients with RSD/CRPS. His website is http://www.doctorbarold.com/avicenna.aspx


Hypnotherapy: This is where I am most worried about my readers being offended and confused. This does not mean that RSD/CRPS is in our head. Please continue to read.

I will tell how my CD plays: My hypnotherapist and I came up with a vision of how I see my RSD working through my body and my brain. I came up with a spot in my brain where the "fire alarm was going off, even though there wasn't any smoke/fire" and a suggestion was placed in my head to have little men go and fix the broken alarm system.

Then we talked about how it felt when the pain inmy leg was bad. The way I describe it to her was like on a heartmonitor when the heart beats there is a beep and the little line shootsup to show the heartbeat, well that is how I see my pain acting. Whenit starts it's small lines with time in between them. When the paingets bad the monitor shows many jumps in extreme intensity. Thesuggestion placed was that the group of little men then went to my legto flatline the nerve that was jumping.

The last suggestion placed wasfor my brain to again act and think like it did before my accident.

The chemistry in my brain changed after that day and she is helping me get it back to straight again.

Here is a site found online to help explain hypnotherapy and pain:
http://www.psychologymatters.org/hypnosis_pain.html

I realize that there will be many people who balk at this form oftreatment because it implies that our problems are mental related; butthat is not the case. Obviously our bodies have been reprogrammed withthis new set of pain facts and maybe some of us can benefit from beingreset.

Here is the example I gave to a friend, Jason with USARSD.org: USA: ... doesn't the premise of hypno...suggest its in the mind?ME: Ina way it is. Cause if nothing is wrong with your limb then where is itbeing manifested. This is another reason i am afraid to mention it
 I have always told people that my nerves turned on and never turned back off well what controls the aspect of pain
Itsdefinitely diff than saying you are mental its more like saying thatyour brain controls all functions in your body so why not teach it tocontrol differently


I am hopefulthat studies can be done to see if these forms of treatment are beneficialto us sufferers. We have definitely tried everything else under the sun.

Please email, comment, anything to let me know what you think. I am curious if other people have tried this. Is this something you would try?

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Followup on Caregiver Sites

I recently received a comment from Tigerlily about her Caregiver website.
She too was on the lookout for sites relating to caregiving and was not able
to find what she needed. So she started her own.

Here is her website information:

http://caregiverscove.org

As always I only pass this information on because I feel it's important to.
You must choose for yourself if the information you find is relevant to your
needs. I can only pray that you find what you need on the various sites that
I have given.

Always pain free hugs,
Christine

http://afflictedwithrsd.com
http://blog.christineleiendecker.com

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Sex and RSD/CRPS

How can an act that feels so good, Cause a flare that feels so bad?

How do you handle it? Have you given up the act all together? I refuse. I
have given up so much for this pain (hiking, tent camping, etc) I cannot
give up something that deepens our connection to each other.

Let's just say that last night the pain started, no sleep, and has continued
into today. Hopefully the flare won't last too long.

Always pain free hugs,
Christine

http://afflictedwithrsd.com
http://blog.christineleiendecker.com

Search for a Cure
www.rsds.org
www.rsdhope.org

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Study Finds That Rents for Modest Studio and 1-Bedroom Housing Units Are Higher Than Monthly Income or People With Disabilities


Thought this might be interesting to some of you. Email was received from
RSDS.org - Also, the links don't work. Just copy and paste them into the URL
address bar to open the links.

Hope all are doing okay. It's getting warmer, then colder, then warm again -
I am doing as well as I can in spite of the weather

*Study Finds That Rents for Modest Studio and 1-Bedroom Housing Units
Are Higher Than Monthly Income or People With Disabilities*

*FOR IMMEDIATE RELEASE*
April 13, 2009
1:43 PM

*CONTACT: National Low Income Housing Coalition

*Taylor Materio, Communications Associate
taylor@nlihc.org
Ph. 202-662-1530 x. 227
Study Finds That Rents for Modest Studio and 1-Bedroom Housing Units Are
Higher Than Monthly Income or People With Disabilities TAC and CCD Housing
Task Force release new study documenting extreme housing affordability
crisis for the most vulnerable people with disabilities

WASHINGTON-April 13, 2009-Across the United States in 2008, people with
disabilities with the lowest incomes faced an extreme housing affordability
crisis as rents for moderately priced studio and one-bedroom apartments
soared above their entire monthly income. The national average rent for a
one-bedroom unit climbed to $749 per month in 2008-higher than $667, the
average monthly income of over 4 million people with disabilities.

These shocking statistics are some of the important findings included
in *Priced
Out in 2008*-a study of the severe housing affordability problems of people
with disabilities who must survive on incomes far below the federal poverty
line. The study compares the federal Supplemental Security Income (SSI)
payments of people with serious and long-term disabilities to U.S.
Department of Housing and Urban Development (HUD) Fair Market Rents for
modestly priced rental units. *Priced Out* is published every two years by
the Technical Assistance Collaborative (TAC) and the Consortium for Citizens
with Disabilities (CCD) Housing Task Force to shine a spotlight on our
nation's most compelling - and least understood-housing affordability
crisis.

In 2008, 219 housing market areas across 41 states had modest one-bedroom
rents that exceeded 100 percent of monthly SSI, including 25 communities
with rents over 150 percent. Between 2006-2008, the number of market areas
with modest rents higher than SSI rose from 164 to 219-a 34 percent
increase. For the first time, there were 3 housing market areas - Honolulu
(HI), Columbia City (MD), and Nantucket County (MA)-where SSI recipients
needed to spend over 200 percent of their income for a modest 1-bedroom
housing unit-not only an impossibility, but absurd.

Perhaps the most shocking revelation in *Priced Out in 2008* is the
precipitous and relentless decline in housing affordability for SSI
recipients since 1998 when the first edition of *Priced Out* was developed.
The amount of monthly SSI income needed to rent a modest one-bedroom unit
has risen an astonishing 62 percent from 69 percent of SSI in 1998 to 112.1
percent of SSI in 2008. The root cause of the nation's most severe-and most
hidden-housing crisis is clearly revealed in the painful statistics included
in the 2008 edition of *Priced Out*.

As stated by Congressman Barney Frank in the Foreword to *Priced Out*, "The
lack of adequate housing is a serious obstacle to a decent life for anyone.
It can be particularly troublesome for people dealing with disabilities, for
whom the physical and emotional stress of a lack of decent shelter are added
burdens for people already doing their best to deal with difficulty."

Discretionary state SSI supplements provided by states are *not* the
solution to the housing affordability problems experienced by people with
disabilities living on SSI payments. Even in the State of Alaska-which had
the highest state SSI supplement in 2008 of $362 and a total monthly SSI
payment of $999-people with disabilities receiving SSI still needed to pay
80.6 percent of their monthly income to rent a modest one-bedroom unit.

While some progress has been made by Federal officials responding to
creating additional affordable housing resources, a bolder action is
essential to inaugurate a new era in housing policy that places the housing
needs of people with disabilities within the mainstream of national housing
policy. TAC and the CCD Housing Task Force urge the federal government to
take the following actions:

- Enact Section 811 legislation that will create at least 5,000 new units
of permanent supportive housing each year.
- Provide 10,000 new Housing Choice Vouchers for People with Disabilities
in HUD's annual budget.
- Support the Administration's proposal to appropriate at least $1
billion in funding for the National Affordable Housing Trust Fund.
- Remove Barriers to Permanent Supportive Housing in the LIHTC Program.
- Facilitate a Coordinated Disability Housing Policy Across the Federal
Government.
- Reinvigorate Fair Housing Enforcement.

By implementing these recommendations, the federal government will send a
powerful message of inclusion to state and local communities, along with the
housing resources necessary to finally begin to achieve the vision of
community integration for people with disabilities first articulated almost
20 years ago through the ADA.

A copy of *Priced Out in 2008 *can be found online at *
http://www.tacinc.org/pubs/pricedout/2008.html
*. For more information about *Priced Out*, please contact Emily Cooper at
ecooper@tacinc.org or (617) 266-5657 x123.
The National Low Income Housing Coalition is dedicated solely to ending
America's affordable housing crisis. Established in 1974 by Cushing N.
Dolbeare, NLIHC educates, organizes and advocates to ensure decent,
affordable housing within healthy neighborhoods for everyone. NLIHC provides
up-to-date information, formulates policy and educates the public on housing
needs and the strategies for solutions.

http://rsds.org/5/news/2009/April/NLIHC_30_178.html




*This E-alert was made possible by the contribution of the members of the
Reflex Sympathetic Dystrophy Syndrome Association (RSDSA). To learn more
about becoming a member of RSDSA, please click
here.
* *RSDSA Privacy
Policy
* *RSDSA Home
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2009 Achilles Walk for Hope & Possibility

*RSDSA at the 2009 Achilles Walk for Hope & Possibility in NYC*
*June 28, 2009 | Central Park
**Online Registration and Forms are now available!
*
* *
Walker and Virtual Walker Registration Available

*Click here for more
information
*
* Team **Co-captains: Jackie Drake and Marsha Tyszler*
Since RSDSA promotes public and professional awareness of CRPS, a neurologic
syndrome characterized by severe and persistent pain that can lead to
disability, we are charged with educating those afflicted with the syndrome,
their families, friends, insurance and healthcare providers about the
potentially-disabling pain it causes.

We have teams in the Achilles Walk for Hope & Possibility to promote
awareness and encourage support for people with CRPS and their family and
friends. Our participation highlights the disabling part of the syndrome and
offers hope to those who suffer from it.

You can participate in the walk and raise pledges, or put together a
corporate team. Perhaps your company has a matching funds arrangement for
not-for-profit fundraising events. Visit the website or contact us to get
started!


http://rsds.org/4/awareness/Achilles/2009/nyc.html

* *
*This E-alert was made possible by the contribution of the members of the
Reflex Sympathetic Dystrophy Syndrome Association (RSDSA). To learn more
about becoming a member of RSDSA, please click
here.
* *RSDSA Privacy
Policy
* *RSDSA Home
Page
*


RSDSA | 99 Cherry St. | Milford | CT | 06460

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A Note from David C Barold MD APC (Email received)


I had the opportunity to attend this seminar once and am intrigued by the
process/treatment. I plan on having it done and will let everyone know about
my experience afterward.


*CHRONIC PAIN / SPORTS INJURIES*
Breakthrough Advancements for the treatment of Pain

David Barold, MD Board Certified Internist will speak at CLUB LA JOLLA on
the revolutionary advancements being made in the field of pain management.
High Power Laser Therapy (HPLT) has already helped thousands of people get
long term relief WITHOUT drugs, needles, side effects, pain or surgery.

If you are experiencing difficulty with:
· Back pain / Sciatica
· Neck and shoulder pain
· Arthritis / Fibromyalgia
· Carpal Tunnel Syndromes
· Sports Injuries
· TMJ
· Peripheral Neuropathy
· Non-healing wounds
· Failed surgical syndromes · Foot pain / Knee pain / Hip pain
· Muscle sprains, strains and tears
· Ligament sprains, strains and tears
· Tendon sprains, strains and tears
· Rotator Cuff injuries
· Stress Fractures
· Tendonitis
· Bursitis
· Shin Splints


*[image: Club La Jolla]

*

Saturday, May 16th, 2009 at 12pm
Club La Jolla
7580 Fay Ave. (across from Vons)
La Jolla, CA 92037

*RSVP: 858-454-7007 *
Cost: FREE
*Please visit our new website at
www.doctorbarold.com
*


David C Barold MD APC | 3990 Old Town Ave. Ste. A-109 | San Diego | CA |
92110




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Fwd: Triumph Over Pain 5K Email from Randy Blancq

Hello Everyone,

It is Randy Blancq from the Quench the Fire Run. A lady from McKinney, TX
with RSD has flown out from Texas to be at each of our first two Quench the
Fire runs. She posted a summary of our first year's run at the RSDSA
website and she has raised money for our run. After our last run, she went
home and created her own run which will take place on May 16th in Texas.
Mom, my girlfriend and I will be heading out to the run to show our support
of Tricia and to support the RSD cause. The funds from the run all go to
RSDSA for research and education. As she did for our run this year, I have
created a fundraising page to support her efforts. I invite any of you to
donate to the run via my fundraising page here:

http://www.active.com/donate/Triumphoverpain/randyqtf

Please consider donating to my page. We who are affected by RSD in some way
(those afflicted and those who help care for them) need to continue to fight
and grow our efforts. Our mission must be constant and our support
unwavering. There are only a handful of RSD events throughout the year that
take place in different parts of the country. Each should be supported in
whatever way possible so that we can continue to address the needs of those
with RSD. We cannot let our message or our efforts just fade away. Our
support cannot be a one time thing. Together we will make strides towards
effective treatments or a cure.

If anyone has ties to New York, you can also support Marsha Tyszler as she
walks in the Achilles Walk for Hope and Possibility in Central Park on June
28th. She will be co-chairing and participating for Team RSD. Again, the
money will go to RSDSA. You can get to her fundraising page here:

http://www.firstgiving.com/marshatyszler2009

Thanks everyone!!!

Dream Big,
Randy

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Attention Connecticut members: May Tag Sale will benefit RSDSA


http://www.rsds.org/1/events/TagSale.jpg

Charity Tag Sale
Saturday, May 23
Sunday, May 24
9:00 AM to 3:00 PM
2410 Main Street
Stratford Center
Stratford, Connecticut
Proceeds will support the Reflex Sympathetic Dystrophy Syndrome
Association’s (RSDSA) mission of promoting greater awareness, funding
research, and supporting individuals with complex regional pain syndrome
(CRPS) and their caregivers. (www.rsds.org)
Donations may be dropped off at 1344 East Main Street in Stratford.
Prior to dropping off materials, please call 203-377-1265.

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Recent Comments

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    10/27/2009
  2. jeisea on Pain Free...
    10/26/2009
  3. AfflictedWithRSD on Conditions that have responded to Laser Therapy
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  6. Barby Ingle on Comic Pain Relief 2007
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  7. Jami McAllister on 2009 Achilles Walk for Hope & Possibility
    5/27/2009
  8. Stmpga on Sex and RSD/CRPS
    5/10/2009
  9. Tigerlily on Caregivers and websites for Caregivers
    5/9/2009
  10. Elle on Sex and RSD/CRPS
    5/7/2009
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